I titled this entry just "Joey" because the story I want to share is the story of a real little boy, one with a name, with friends, and with a chance, if someone will give it to him. This is not really my story to tell, so I'm just going to explain why I'm asking you to read the story directly from Joey's mom and hope you let her tell you the story.For a few months now, a friend has been introducing me to Joey through her boys' friendship with him--how complicated insurance is, how generous people have been with donating to Joey's medical expenses, how much Joey loved his birthday party (which I helped cut out Minecraft shapes for, just so you know) even though he was incredibly tired that day. In many ways, Joey is like most fourth grade boys, loving origami, Boy Scouts, and reading. But last year, Joey was diagnosed with cancer, and he needs access to a new line of drugs that are about the only thing left that might make a difference.
Below is an email from my friend with links to the blog his mom keeps and the petition requesting that one of the drug companies allow compassionate use of these drugs. I'd be so grateful if you'd take a moment to read his story and consider adding your name to those asking these companies to show that they can be human as well.
Today a friend started a petition on change.org to try to pressure the drug companies to allow Joey to at least try the new medication that shows so much promise. Please sign the petition and forward it on to others. The more public support we get, the more pressure is put on the drug companies.
More information about Joey and his journey is available at teamjoeyx.blogspot.com or https://www.facebook.com/teamjoeyxu
Here is the link to the petition: http://www.change.org/petitions/genentech-please-grant-10-year-old-juntao-joey-xu-compassionate-use-of-your-anti-pd-1-l1-immunotherapy-drug-he-has-exhausted-all-other-options-and-cannot-wait-for-pediatric-trials-to-begin?recruiter=89789658&utm_campaign=signature_receipt&utm_medium=email&utm_source=share_petition#supporters
And if you know someone who might be interested in Joey's story or want to add their name to the petition, please feel free to forward them the information!
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